医患杂谈:求助－救救我老公吧,他得了疑难杂症

<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">我老公</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">43</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">岁，得了一种叫</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">poems</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">综合症的非常罕见的病。最早从</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">06</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">年</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">5</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">月起，右脚足心痛。后逐渐向上发展，现在是双下肢疼痛（这种痛是一种难以名状的感觉：包括针刺样的刺痛、麻木、胀痛等感觉揉和在一起)异常，双腿无力，皮肤变薄变黑变精选，皮肤变薄处似皮下有水，抓破后流水（无色透明)久不结痂。</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><?xml:namespace prefix = o ns = "urn:schemas-microsoft-comfficeffice" /><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">下面对</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">poems</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">综合症做一简单介绍：</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">POMES</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">意思是：<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">P: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">多发性神经病<SPAN lang=EN-US>(Polygneuropathy)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">O: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">脏器肿大<SPAN lang=EN-US>(Organomegaly)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">E: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">内分泌病<SPAN lang=EN-US>(Endocrinopathy)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">M: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">蛋白<SPAN lang=EN-US>(M-protein)<o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">S: </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">皮肤改变<SPAN lang=EN-US>(Skin-changes)</SPAN>。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体"><FONT size=3>取其英文之首字母<SPAN lang=EN-US>,</SPAN>称为<SPAN lang=EN-US>POEMS</SPAN>综合征。<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体"><o:p><FONT size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体"><FONT size=3>目前我老公占了其中的三样：<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">P</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">多发性神经病<SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">呈进行性、对称性感觉、运动损害，从四肢远端向近端发展，觉麻木、疼痛、乏力、软弱、肌肉逐渐萎缩</SPAN>。双小腿破处久不结痂。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">M</SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">蛋白<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">和骨髓异常</SPAN><SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">血中出现<SPAN lang=EN-US>M</SPAN>蛋白</SPAN>，<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">为<SPAN lang=EN-US>IgG</SPAN>型</SPAN><SPAN lang=EN-US>, </SPAN>目前<SPAN lang=EN-US>IgG</SPAN>为<SPAN lang=EN-US>2450</SPAN>，正常指标是<SPAN lang=EN-US>1600</SPAN>以下。<SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体"><FONT size=3>骨髓象显示：<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">浆细胞增生</SPAN>，目前为<SPAN lang=EN-US>6.5</SPAN>％，正常为<SPAN lang=EN-US>5</SPAN>％以下<SPAN lang=EN-US><o:p></o:p></SPAN></FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><SPAN lang=EN-US style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">S </SPAN><SPAN style="COLOR: #333333; FONT-FAMILY: 宋体; mso-bidi-font-size: 10.5pt; mso-font-kerning: 0pt; mso-bidi-font-family: 宋体">皮肤改变<SPAN lang=EN-US>: </SPAN><SPAN style="BACKGROUND: yellow; mso-highlight: yellow">常见皮肤色素沉着</SPAN>，<SPAN style="BACKGROUND: yellow; mso-highlight: yellow">皮肤粗糙、变硬、指甲变白</SPAN><SPAN lang=EN-US><o:p></o:p></SPAN></SPAN></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>另外，还有极轻微的水肿。有时手或脚稍微有些肿，但不厉害，有时根本不明显。</FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><FONT size=3><FONT color=#000000><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">目前我老公主要是双腿疼得厉害，周围神经炎严重。刺痛、麻木、胀痛等感觉揉和在一起，</SPAN><SPAN lang=EN-US><FONT face="Times New Roman">24</FONT></SPAN><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman"">小时不间断。他说是皮肤疼，不是骨头疼。腿和脚不敢碰东西，甚至腿和裤子、被子接触时都觉得疼。每天生活在痛苦的深渊，疼得静坐不能。勉强能走路，但是感觉双腿异常沉重，就象是穿着钢丝做成的袜子。每天靠吃强力的止痛药才稍感缓解。</SPAN></FONT></FONT></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN lang=EN-US><o:p><FONT face="Times New Roman" color=#000000 size=3>&nbsp;</FONT></o:p></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>看着他痛苦的样子，我真是心如刀割。近一年来，我们辗转各大医院求医，但是症状没有得到丝毫缓解。医生都没有见过这样的病，也束手无策。我觉得当务之急是缓解他的症状，不能让他这么痛下去啊！</FONT></SPAN></P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3></FONT></SPAN>&nbsp;</P>
<P class=MsoNormal style="MARGIN: 0cm 0cm 0pt"><SPAN style="FONT-FAMILY: 宋体; mso-ascii-font-family: "Times New Roman"; mso-hansi-font-family: "Times New Roman""><FONT color=#000000 size=3>请问各位网友，哪位医生能治这种病？或哪位病家得过类似的病，治疗效果不错的请介绍一下！谢谢！</FONT></SPAN></P>
－－－－－－－－－－－大小便如何
－－－－－－－－－－－试试灸法
－－－－－－－－－－－<P>大小便正常.</P>
<P>&nbsp;</P>
<P>"试试灸法",能否明示?</P>
<P>&nbsp;</P>
<P>万分感谢!</P>
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－－－－－－－－－－－看过中医么？
－－－－－－－－－－－面色是什么颜色,什么性格?
－－－－－－－－－－－此病中医名叫"脚气病"，又名缓风，脚弱，软脚病。湿脚气方用鸡鸣散加减。患者应有嗜酒史。
－－－－－－－－－－－<P></P>
<P>&nbsp;</P>
<P>有点谱尺,很似.</P>
－－－－－－－－－－－POEMS综合症此病因体虚汗出，津液耗伤，筋脉失于濡养所致，中医治疗宜和营解肌、舒缓项强、通经,
是个难缠的病。胡椒粉，酒，羊肉等油腻辛辣食物是应该禁食的。